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  1. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  2. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  3. Department of Medicine, Harvard Medical School, Boston, Massachusetts
  4. Corresponding author: Stephanie G. Harshman, PhD, Massachusetts General Hospital, Neuroendocrine Unit, 55 Fruit St, Boston, MA 02114 ([email protected]).
  5. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  6. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  7. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  8. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  9. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  10. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  11. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  12. Department of Medicine, Harvard Medical School, Boston, Massachusetts
  13. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  14. Department of Psychiatry, Harvard Medical School, Boston, Massachusetts
  15. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  16. Department of Medicine, Harvard Medical School, Boston, Massachusetts
  17. Division of Pediatric Endocrinology, Massachusetts General Hospital for Children, Boston, Massachusetts
  18. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  19. Department of Psychiatry, Harvard Medical School, Boston, Massachusetts
  20. Great Ormond St Institute of Child Health, University College London, London, United Kingdom
  21. Department of Psychiatry, Faculty of Medicine, University of Geneva, Geneva, Switzerland
  22. Department of Paediatrics, Gynaecology, and Obstetrics, Faculty of Medicine, University of Geneva, Geneva, Switzerland
  23. Neuroendocrine Unit, Massachusetts General Hospital, Boston, Massachusetts
  24. Department of Medicine, Harvard Medical School, Boston, Massachusetts
  25. Designates co-senior authors
  26. Eating Disorders Clinical and Research Program, Massachusetts General Hospital, Boston, Massachusetts
  27. Department of Psychiatry, Harvard Medical School, Boston, Massachusetts
  28. Designates co-senior authors
  1. Chen Y-L, Chen WJ, Lin K-C, et al. Prevalence of DSM-5 mental disorders in a nationally representative sample of children in Taiwan: methodology and main findings. Epidemiol Psychiatr Sci. 2019;29:e15. PubMed CrossRef
  2. Fisher MM, Rosen DS, Ornstein RM, et al. Characteristics of avoidant/restrictive food intake disorder in children and adolescents: a “new disorder” in DSM-5. J Adolesc Health. 2014;55(1):49–52. PubMed CrossRef
  3. Cooney M, Lieberman M, Guimond T, et al. Clinical and psychological features of children and adolescents diagnosed with avoidant/restrictive food intake disorder in a pediatric tertiary care eating disorder program: a descriptive study. J Eat Disord. 2018;6(1):7. PubMed CrossRef
  4. Eddy KT, Thomas JJ, Hastings E, et al. Prevalence of DSM-5 avoidant/restrictive food intake disorder in a pediatric gastroenterology healthcare network. Int J Eat Disord. 2015;48(5):464–470. PubMed CrossRef
  5. Murray HB, Bailey AP, Keshishian AC, et al. Prevalence and characteristics of avoidant/restrictive food intake disorder in adult neurogastroenterology patients. Clin Gastroenterol Hepatol. 2020;18(9):1995–2002.e1. PubMed CrossRef
  6. Eddy KT, Harshman SG, Becker KR, et al; Radcliffe ARFID Workgroup. Radcliffe ARFID Workgroup: toward operationalization of research diagnostic criteria and directions for the field. Int J Eat Disord. 2019;52(4):361–366. PubMed CrossRef
  7. Strand M, von Hausswolff-Juhlin Y, Welch E. A systematic scoping review of diagnostic validity in avoidant/restrictive food intake disorder. Int J Eat Disord. 2019;52(4):331–360. PubMed CrossRef
  8. American Psychiatric Association. Diagnostic and Statistical Manual for Mental Disorders. Fifth Edition. Washington, DC: American Psychiatric Association; 2013.
  9. Wakefield JC. Diagnostic issues and controversies in DSM-5: return of the false positives problem. Annu Rev Clin Psychol. 2016;12(1):105–132. PubMed CrossRef
  10. Tandon R, Gaebel W, Barch DM, et al. Definition and description of schizophrenia in the DSM-5. Schizophr Res. 2013;150(1):3–10. PubMed CrossRef
  11. Wiggins LD, Rice CE, Barger B, et al. DSM-5 criteria for autism spectrum disorder maximizes diagnostic sensitivity and specificity in preschool children. Soc Psychiatry Psychiatr Epidemiol. 2019;54(6):693–701. PubMed CrossRef
  12. Attia E, Roberto CA. Should amenorrhea be a diagnostic criterion for anorexia nervosa? Int J Eat Disord. 2009;42(7):581–589. PubMed CrossRef
  13. Thomas JJ, Roberto CA, Brownell KD. Eighty-five per cent of what? discrepancies in the weight cut-off for anorexia nervosa substantially affect the prevalence of underweight. Psychol Med. 2009;39(5):833–843. PubMed CrossRef
  14. Zickgraf HF, Ellis JM. Initial validation of the Nine Item Avoidant/Restrictive Food Intake disorder screen (NIAS): a measure of three restrictive eating patterns. Appetite. 2018;123:32–42. PubMed CrossRef
  15. Bryant-Waugh R, Micali N, Cooke L, et al. Development of the Pica, ARFID, and Rumination Disorder Interview, a multi-informant, semi-structured interview of feeding disorders across the lifespan: a pilot study for ages 10–22. Int J Eat Disord. 2019;52(4):378–387. PubMed CrossRef
  16. Bailey KV, Ferro-Luzzi A. Use of body mass index of adults in assessing individual and community nutritional status. Bull World Health Organ. 1995;73(5):673–680. PubMed
  17. NHLBI Obesity Education Initiative Expert Panel on the Identification, Evaluation, and Treatment of Overweight and Obesity in Adults. The Practical Guide for Identification, Evaluation, and Treatment of Overweight and Obesity in Adults. NIH Publication Number 00-4084. US Department of Health and Human Services; 2000.
  18. WHO Multicentre Growth Reference Study Group. WHO Child Growth Standards—Length/Height-for-Age, Weight-for-Age, Weight-for-Length, Weight-for-Height and Body Mass Index-for-Age: Methods And Development. World Health Organization; 2006.
  19. Le Grange D, Doyle PM, Swanson SA, et al. Calculation of expected body weight in adolescents with eating disorders. Pediatrics. 2012;129(2):e438–e446. PubMed CrossRef
  20. Sherar LB, Mirwald RL, Baxter-Jones ADG, et al. Prediction of adult height using maturity-based cumulative height velocity curves. J Pediatr. 2005;147(4):508–514. PubMed CrossRef
  21. White JV, Guenter P, Jensen G, et al; Academy Malnutrition Work Group; ASPEN Malnutrition Task Force; ASPEN Board of Directors. Consensus statement: Academy of Nutrition and Dietetics and American Society for Parenteral and Enteral Nutrition: characteristics recommended for the identification and documentation of adult malnutrition (undernutrition). JPEN J Parenter Enteral Nutr. 2012;36(3):275–283. PubMed CrossRef
  22. Becker P, Carney LN, Corkins MR, et al; Academy of Nutrition and Dietetics; American Society for Parenteral and Enteral Nutrition. Consensus statement of the Academy of Nutrition and Dietetics/American Society for Parenteral and Enteral Nutrition: indicators recommended for the identification and documentation of pediatric malnutrition (undernutrition). Nutr Clin Pract. 2015;30(1):147–161. PubMed CrossRef
  23. Institute of Medicine. Dietary Reference Intakes: The Essential Guide to Nutrient Requirements. Washington, DC: The National Academies Press; 2006.
  24. Sharp WG, Postorino V, McCracken CE, et al. Dietary intake, nutrient status, and growth parameters in children with autism spectrum disorder and severe food selectivity: an electronic medical record review. J Acad Nutr Diet. 2018;118(10):1943–1950. PubMed CrossRef
  25. Willett WC, Sampson L, Stampfer MJ, et al. Reproducibility and validity of a semiquantitative food frequency questionnaire. Am J Epidemiol. 1985;122(1):51–65. PubMed CrossRef
  26. Sonneville K, Duggan C. Manual of Pediatric Nutrition. 5th ed. Shelton, CT: People’s Publishing House—USA; 2014.
  27. Braegger C, Decsi T, Dias JA, et al; ESPGHAN Committee on Nutrition. Practical approach to paediatric enteral nutrition: a comment by the ESPGHAN committee on nutrition. J Pediatr Gastroenterol Nutr. 2010;51(1):110–122. PubMed CrossRef
  28. Singhal S, Baker SS, Bojczuk GA, et al. Tube feeding in children. Pediatr Rev. 2017;38(1):23–34. PubMed CrossRef
  29. Sharp WG, Jaquess DL, Morton JF, et al. Pediatric feeding disorders: a quantitative synthesis of treatment outcomes. Clin Child Fam Psychol Rev. 2010;13(4):348–365. PubMed CrossRef
  30. Dunitz-Scheer M, Marinschek S, Beckenbach H, et al. Tube dependence: a reactive eating behavior disorder. Childhood Obestity and Nutrition. 2011;3(4):209–215. CrossRef
  31. Dovey TM, Wilken M, Martin CI, et al. Definitions and clinical guidance on the enteral dependence component of the avoidant/restrictive food intake disorder diagnostic criteria in children. JPEN J Parenter Enteral Nutr. 2018;42(3):499–507. PubMed CrossRef
  32. Bohn K, Fairburn C. Clinical Impairment Assessment Questionnaire (CIA 3.0). In: Fairburn C, ed. Cognitive Behavior Therapy and Eating Disorders. Guilford Press; 2008.
  33. Bohn K, Doll HA, Cooper Z, et al. The measurement of impairment due to eating disorder psychopathology. Behav Res Ther. 2008;46(10):1105–1110. PubMed CrossRef
  34. Goodman R. The Strengths and Difficulties Questionnaire: a research note. J Child Psychol Psychiatry. 1997;38(5):581–586. PubMed CrossRef
  35. Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care. 2001;39(8):800–812. PubMed CrossRef
  36. Palermo TM, Long AC, Lewandowski AS, et al. Evidence-based assessment of health-related quality of life and functional impairment in pediatric psychology. J Pediatr Psychol. 2008;33(9):983–996, discussion 997–998. PubMed CrossRef
  37. Abidin R. Parenting Stress Index. PAR; 2012.
  38. Zucker N, Copeland W, Franz L, et al. Psychological and psychosocial impairment in preschoolers with selective eating. Pediatrics. 2015;136(3):e582–e590. PubMed CrossRef
  39. Egger HL, Angold A. The Preschool Age Psychiatric Assessment (PAPA): a structured parent interview for diagnosing psychiatric disorders in preschool children. In: DelCarmen-Wiggins R, Carter A, eds. Handbook of Infant, Toddler, and Preschool Mental Health Assessment. New York, NY: Oxford University Press; 2004:223–243.
  40. Sysko R, Glasofer DR, Hildebrandt T, et al. The Eating Disorder Assessment for DSM-5 (EDA-5): development and validation of a structured interview for feeding and eating disorders. Int J Eat Disord. 2015;48(5):452–463. PubMed CrossRef
  41. Kaufman J, Birmaher B, Brent D, et al. Schedule for Affective Disorders and Schizophrenia for School-Age Children-Present and Lifetime Version (K-SADS-PL): initial reliability and validity data. J Am Acad Child Adolesc Psychiatry. 1997;36(7):980–988. PubMed CrossRef
  42. Cooper Z, Cooper PJ, Fairburn CG. The validity of the Eating Disorder Examination and its subscales. Br J Psychiatry. 1989;154(6):807–812. PubMed CrossRef
  43. Kambanis PE, Kuhnle MC, Wons OB, et al. Prevalence and correlates of psychiatric comorbidities in children and adolescents with full and subthreshold avoidant/restrictive food intake disorder. Int J Eat Disord. 2020;53(2):256–265. PubMed CrossRef
  44. Kuczmarski RJ, Ogden CL, Guo SS, et al. 2000 CDC growth charts for the United States: methods and development. Vital Health Stat 11. 2002;(246):1–190. PubMed
  45. Scientific Report of the 2015 Dietary Guidelines Advisory Committee. US Department of Health and Human Services. 2015. https://health.gov/sites/default/files/2019-09/Scientific-Report-of-the-2015-Dietary-Guidelines-Advisory-Committee.pdf
  46. Institute of Medicine Panel on Micronutrients. Dietary References Intakes for Vitamin K, Arsenic, Chromium, Copper, Iodine, Iron, Manganese, Molybdenum, Silicon, Vanadium, and Zinc. Washington, DC: National Academies Press; 2001.
  47. O’Connor SG, Ke W, Dzubur E, et al. Concordance and predictors of concordance of children’s dietary intake as reported via ecological momentary assessment and 24 h recall. Public Health Nutr. 2018;21(6):1019–1027. PubMed CrossRef
  48. Frankenfeld CL, Poudrier JK, Waters NM, et al. Dietary intake measured from a self-administered, online 24-hour recall system compared with 4-day diet records in an adult US population. J Acad Nutr Diet. 2012;112(10):1642–1647. PubMed CrossRef
  49. Schakel SF. Maintaining a nutrient database in a changing marketplace: keeping pace with changing food products—a research perspective. Journal of Food Composition and Analysis. 2001;14(3):315–322. CrossRef
  50. Schakel SF, Buzzard IM, Gebhardt SE. Procedures for estimating nutrient values for food composition databases. Journal of Food Composition and Analysis. 1997;10(2):102–114. CrossRef
  51. Schakel SF, Sievert YA, Buzzard IM. Sources of data for developing and maintaining a nutrient database. J Am Diet Assoc. 1988;88(10):1268–1271. PubMed
  52. Zickgraf HF, Murray HB, Kratz HE, et al. Characteristics of outpatients diagnosed with the selective/neophobic presentation of avoidant/restrictive food intake disorder. Int J Eat Disord. 2019;52(4):367–377. PubMed CrossRef
  53. Wortzel JR, Turner BE, Weeks BT, et al. Trends in mental health clinical research: characterizing the ClinicalTrials.gov registry from 2007–2018. PLoS One. 2020;15(6):e0233996. PubMed CrossRef
  54. Becker AE, Hadley Arrindell A, Perloe A, et al. A qualitative study of perceived social barriers to care for eating disorders: perspectives from ethnically diverse health care consumers. Int J Eat Disord. 2010;43(7):633–647. PubMed CrossRef
  55. Bird JK, Murphy RA, Ciappio ED, et al. Risk of deficiency in multiple concurrent micronutrients in children and adults in the United States. Nutrients. 2017;9(7):655. PubMed CrossRef
  56. Kendler KS, Parnas J, Appelbaum PS. DSM-5.1: Perspectives on continuous improvement in diagnostic frameworks. In: Kendler KS, Parnas J, eds. Philosophical Issues in Psychiatry IV: Classification of Psychiatric Illness. Oxford University Press; 2017.